No Air

I felt secure in my health. Invincible. I knew I was not immortal but I pictured a long, active, healthy life surrounded by people I love. I had a follow-up appointment scheduled with my doctor on a day when my husband had training for his job. He offered to change his training days, but I was so confident all would be fine that I told him not to bother. I would go alone. It would be fine. I would be fine.

As I  waited in the oncologist’s office, I had some mild pre-report jitters, which is normal.. The doctor came in and we engaged in a couple of minutes of idle chit-chat. I was waiting for the words, “Everything is fine. I will see you in three months.” But, instead, he opened his mouth and told me there was a lymph node near the celiac plexus that needed to be biopsied. As we looked through my scans together, he showed me another spot, this one on my liver. He emphasize that both could be nothing. However, he was recommending further testing to be sure.

As I listened to him, I kept a half-smile on my face, because I don’t want to show that I am rattled. But, I can feel the air leaving the room. I have a deja vu. I am back in 2013  when I first heard bad news about a tumor in my body that needed to be checked out further. I feel the same half-smile on my face, nodding in agreement to a voice that sounds a million miles away. No air. I hear the tumor board will discuss my case and let me know what will happen next. I think: I am alone. WHY did I come alone? Because I thought I was fine. I AM fine. But I thought I was fine in 2013, also. I don’t know what is real. I cannot trust my own instincts. I am afraid and so very alone.

I think, ‘What am I going to tell my daughters?’ I cannot tell them everything is fine, but I don’t want them to worry needlessly. After all,  I am going to be fine.

I leave and am, fortunately, able to speak to my husband. He sounds like I feel. A punch to the stomach. Fear. Disbelief. We are both desperate to be together, but are over 100 miles apart. I cry on a bench by the hospital elevator and I don’t care who sees me. I can’t drive. I can’t breathe. He has to return to class. I drag myself downstairs for the ride home but I just can’t do it yet. I sit on another bench and cry for 20 minutes, watching the rain pouring down outside. What am I going to tell my daughters?

Eventually, I pull it together enough to drive home. I talk to my parents. I talk with a couple of very close friends. I get home and sit on the floor, unable to move for 20 minutes. I am so thankful for Sadie, my Boston Terrier, who is licking my face. When my daughters come home, I tell them I need another test, but I do not elaborate. We have too little information. I am scared but I do not want to cause them unnecessary stress. There is no point. It seems cruel. They will know as soon as we know for sure one way or the other, good news or bad.

Sadie on my lap

The doctor calls the next day and says a biopsy is recommended. I vacillate between thinking I am totally fine and feeling fear that comes from seemingly nowhere. It consumes me on a visceral level. It does not seem to be triggered by anything in particular. I can only assume it is a response to the old wounds and fears coming back. One minute I am fine and the next I feel like the earth is swallowing me whole.

I cannot think about possible treatments. In fact, I don’t. I think about the test and just want to get through that. But when Stephen and I start discussing plans we have…races we have signed up for and trips we will take to see family, I become choked up. “But I have PLANS,” I think. “I have so much stuff that I want to do!”

The waiting is the hardest. Neither of us sleep well. We walk around, distracted zombies, trying to go through the motions and fulfill our daily duties and obligations. There is no time to emotionally deal with our personal crisis. We are so busy, we wish we had time to just sit and hold each other. When there is a moment of down time, our thoughts become our own worst enemies.

Steve & Tonia Santa Fe

I have the test. They biopsy enlarged lymph nodes. I go home and I wait and wait and wait. i try to figure out what it means. Why haven’t I heard anything? Is no news good news or does he not want to deliver bad news over the phone? I over analyze.

I actually think that I am healthy and fine. The logical side thinks I will be OK, but since I thought I was fine prior to my initial diagnosis, that leaves the door slightly open. Wednesday comes and I am supposed to see the doctor. A blizzard arrives, shutting down essentially every major road on the Colorado Front Range and I am stuck at home waiting to see if I will learn any news. I work and play games with my kids, but I am anxious and distracted. Finally, my phone rings and I get the news: I am fine. There is no sign of cancer in the lymph nodes.

There is relief and joy when I tell people, but after two-and-a-half weeks of living in some alternate universe, my own personal little time in hell, I am mentally exhausted. The news comes to me not as a surprise, but as a confirmation. I am fine. I knew it.

Today, as everything sinks in, I celebrate a new day of continued good health with a run. There is air. I can breathe again.

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Link to UltraRunning Magazing Article

 

Just wanted to link to an article that I wrote for UltraRunning magazine. This article is about a woman who is an inspiration to me. Junko Kazukawa is a woman that I had the pleasure of running with in 2013 at the Bear Chase Trail Race. In 2015, she did something that no one else has ever done before: she completed the Leadwoman series AND the Grand slam of ultrarunning in the same year. She is also a two-time breast cancer survivor. Most importantly, Junko is an all-around good human being. Read her story here:

http://www.ultrarunning.com/featured/junko-kazukawa-grand-slammer-leadwoman-2x-cancer-survivor/

Junko Grand Slam awards

Two Year Cancerversary

November 18, 2013. That was the day I had surgery for pancreatic cancer. I was one of the lucky ones. I could have surgery. Most people with my diagnosis cannot. Half of my pancreas and my whole spleen were removed and then shortly thereafter I went through 18 rounds of chemo. It was a long road that I have previously chronicled here, but I made it through. Most pancreatic cancer patients do not survive the first year. In fact, 80% do not make it to the one year mark.

When I planned my surgery, I did it strategically. In our house, November is a busy month. Our oldest daughter, my husband and my father all have November birthdays. I remember scheduling my surgery between my daughter’s 16th birthday and my husband and dad’s birthdays. I knew my illness cast a dark cloud over all of our celebrations that year, but I wanted to try to give enough time so that we could celebrate everyone else’s special day.

Last year, as the birthdays and my cancerversary approached, I admit that I thought a lot about my own anniversary. I was excited for the birthdays and so grateful that I got to be there for them, but I thought a great deal about my own anniversary and what it meant to me. I thought about everything that it signified and all of the stuff that we had experienced over that past year.

This year, as my cancerversary has approached, I have been aware of it, but in a significant mental and emotional shift, it has become less important to me. I have been more focused on other stuff in my life: Riley’s 18th birthday, my husband’s 50th birthday, my daddy’s birthday, my work and the race series that I am currently wrapped up in co-directing.

Still, it is an important anniversary and one that bears marking, because so much in our worlds changed two years ago. At this point in time in 2013, our worlds were rocked by my diagnosis. We did not know how much time I would have with my family. I think about the things that I have gotten to take part in over the last two years that I might not have had I not been so fortunate throughout my diagnosis and treatment. There have been birthdays. The girls were 10 and 16 when I was diagnosed. Now they are 12 and 18. Riley is legally an adult. Riley got her driver’s license. The college decision has been made (Go CSU Rams!) There have been homecomings and a prom. For Peyton, there have been karate belts earned, selection for a club volleyball team and a number of other successes in athletic and academic areas. She moved from elementary to middle school as I finished chemotherapy.

With Riley & Peyton on Riley's 18th birthday

With Riley & Peyton on Riley’s 18th birthday

Steve and I celebrated another year of wedded bliss. My family and I took an amazing vacation together, where I also happened to run a 100 mile race.

The family crossing the finish line with me!

The family crossing the finish line with me at the Bryce 100

Goofing around in Bryce Canyon after the race

Goofing around in Bryce Canyon after the race

I ran a full marathon and a half-marathon with Project Purple charity teams.

With Elli & Dino

With Elli & Dino in Lincoln, NE

With Jenny

With Jenny in her home state of NE

Several of the Project Purple Denver team members at the event.

Several of the Project Purple Denver team members at the event.

I ran a 50 mile race this fall at the Bear Chase Trail Race.

Lucky girl getting a hug from both RDs, Ben Reeves (l) and David Manthey (R). Notice the missing glass lens.

Lucky girl getting a hug from both RDs, Ben Reeves (l) and David Manthey (R). Notice the missing glass lens.

I ran a mountain race with my husband and friends.

Breck Crest with my honey

Breck Crest with my honey

With Debby, my friend since I moved to CO in 1999!

With Debby, my friend since I moved to CO in 1999!

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I race directed a charity 5k for Project Purple and continued working with our local club, the Pikes Peak Road Runners.

Having fun after the race!

Having fun after the Project Purple 5k!

With my PPRR Fall Series crew

With my PPRR Fall Series crew

We gained a new family member when we adopted Willy in January.

Our newest family member, Willy

Our newest family member, Willy

And last week, we said good-bye to the Grand Dame, Greta, who passed away..

She was a natural beauty

Greta, the Bullmastiff

I got to spend time with our wonderful extended family back east over the summer, which is something I never, ever take for granted.

Through all of this, I have met so many amazing and wonderful people that I simply cannot name them all. I do hope they all know the positive impact they have had on my life.

I often think in long-term thoughts now, which is something I did not always feel that I could or should do. I wonder what college will be like for Riley and what high school will be like for Peyton. I wonder what new adventures are on the horizon for Steve and me as our kids grow and prepare to move on to live their own lives independent of us..

Not everything is easy or joyous, of course. You never get through cancer without any long-term repercussions. I saw an endocrinologist recently and  we agreed that it was time to try a medication to help stabilize my blood sugar levels, which have been all over the place. I have not felt like my normally energetic self for a while now and I am hoping that this will help return me to where I used to be. I am still trying to make peace with this recent turn of events. I would never have been in this position if I had not had half of my pancreas taken out. While I know that I am so very lucky to be here, I am also frustrated by how I have been feeling. If pancreatic cancer had not chosen me, I would not be facing the health issues that I am facing now.

All of the above being said, I know that pancreatic cancer gave me many gifts, too. One of those gifts is the gift of friendship from so many people I would not have otherwise met. I will relay one story now because it demonstrates to me the serendipity of life. In September, I was running the Bear Chase 50 mile race. I was wearing my Project Purple shirt which says “Survivor/Running with half a pancreas” on the back. I passed a woman who was running the 50k (different courses that converge over time) and she asked me, “Why are you running with half a pancreas?” I told her my story and she told me that she was a type 1 diabetic. We chatted a bit, but eventually parted ways. I had hoped that I would see her again after the race was over, but I did not.

Three weeks later, I was working the Project Purple booth at the Denver Rock ‘n’ Roll marathon expo. Guess who stopped by?

With my new friend, Jen.

With my new friend, Jen.

Jen and I were meant to meet. I believe that fully in my heart. As it turns out, she had a friend who was battling pancreatic cancer. Sadly, her friend passed away shortly after we met in Denver; another tragic loss to this dreadful disease.

When I met with the endocrinologist a couple of weeks later, he told me to make friends with Type 1 diabetic athletes. I believe we met because we both needed each other at this point in our lives. She needed to see someone living beyond PC and I needed to meet someone who could show me that distance running and diabetes can co-exist. It all seems overwhelming right now but I know that I will figure it all out in time.

So much has happened in the past two years. I am so grateful that I am still here. I have been given the gift of more time with my family, and I have been given the gift of new and meaningful friendships. This year I look forward to seeing my eldest graduate from high school and go off to college, and to seeing my youngest enter her teenage years. Even though it has not always been easy, I am excited to see what year three brings!

You can read last year’s cancerversary remembrance here:

https://mypancreasranaway.wordpress.com/2014/11/18/remembering-on-my-cancerversary/

Don’t Ever Get Sick: Insurance company woes

I recently received an explanation of benefits form from my insurance company showing that it would not pay my most recent oncology appointment. They did pay for part of the blood tests the oncologist ordered, but they refused to pay for the other blood tests. I am nearly two years out from my pancreatic cancer diagnosis. I have seen the same in-network oncologist all of the way through my treatment. This is just the latest in a long line of refusals as I have gone through this process of cancer diagnosis, treatment and recovery. It is cruel to treat patients the way I and so many others have been treated. Here is a look at some of the highlights from the past year.

In 2013, I switched doctors because my old primary care doctor was completely unresponsive to my complaints. My new doctor was fabulous and ordered some tests to determine why I was having some symptoms which concerned me. As we learned that I had a pancreatic tumor of some kind that needed to be removed, I started researching pancreatic surgeries. I learned that the mortality and morbidity rate for these surgeries continues to be much higher at hospitals that are considered to be low-volume for these procedures. I determined that study after study has recommended that patients have these surgeries only at high volume hospitals. Kaiser has none of the top PC facilities in my network. I found a highly regarded PC surgeon just one hour away. My primary care doctor did a lot of work seeking approval for me to see this noted surgeon, but my insurance company refused to allow me to go. My primary’s office fought this for a while, but the clock was ticking. My GI doctor said the tumor needed to come out ASAP. I did not have time to fight. I gave up and had surgery locally. In essence, Kaiser was willing to allow me to have surgery with no regard to potential outcome and without regard to the clinical evidence that high volume hospitals are safest for patients.

Prior to my surgery, the GI doctor thought the tumor was pre-malignant. When the tumor came out, part of it was found to be adenocarcinoma. I have always wondered if it was cancer all along or did it just become cancerous while we waited and fought with my insurance company?

Following my surgery, Kaiser would not allow me to go out of network to a pancreatic cancer oncology specialist. I received a message from a Kaiser rep telling me that she was not aware of any PC oncology specialists. There ARE PC specialists in this country. There are a couple of PC specialists an hour from my home, but they would not have been covered. When you go to a PC specialty facility, they give patients access to GI doctors, endocrinologists, and dietitians as part of a team treatment plan. Finally, two years after surgery, I have an appointment with an endocrinologist. I am beyond grateful for it, but wish I had not had to wait this long.

I saw and continue to see the same local oncologist. He ordered a PET scan. That was rejected. My oncologist made a referral to another specialist for an issue that has developed following treatment. That was also rejected.

Shortly after getting home from the hospital, as I was in the middle of a flurry of rejections for my pancreatic cancer treatment, I got a letter from kaiser reminding me that I needed a mammogram and a pap smear. While I agree that those tests are important, I resented the fact that my lady parts seemed to be of more importance to my insurance company than my pancreas, which was currently trying to kill me.

My OB/GYN ordered a breast MRI. That was rejected. It was appealed and rejected again.

Following my abdominal surgery, I developed some back issues. The body tends to become weak after being cut straight down the middle. I started seeing  a physical therapist. Even though I have had visits authorized, Kaiser has rejected payment on every single claim. I have called at least 8 times now, and each time I have been told, “We will pay this.” I have documented these calls along with reference numbers each and every time. Within a week, I get another EOB where payment is refused. If they did not want to pay for Physical Therapy, they should have rejected it out of hand, rather than authorize the visits and then refuse payment each and every time.

Yesterday, I got another PT rejection notice. In the same envelope, I got a notice of the refusal to pay my oncologist and for some of the labs. I called Kaiser again. The rep had no idea why the oncology appointment was rejected. She said there was absolutely no reason for it. Then she saw the list of PT rejections and thought that maybe the oncology appointment was rejected because they were just rejecting ALL of my services.

I have been exceedingly polite, but I have lost all patience with my insurance company. The powers that be demonstrated early on in this journey that they had no regard for actual medical science when I requested a surgeon that was out of network. What this comes down to is greed and a total disregard for patients AND for their doctor’s expertise. When you are dealing with an illness where the survival rate is 6%, there is no margin for error. Patients should be granted the leeway to go to specialized facilities. In fairness, the Kaiser representatives have all been polite and they seem to be doing their best to be helpful. I do not know who or how payments and authorizations are determined, but it seems that the new normal is simply to reject EVERYTHING out of hand.

There is a lot more to this story. I have a stack of rejection forms in a binder that I started back when this journey began in 2013. Kaiser was great when I was healthy. They are fine when all you need is a physical and a flu shot. Heaven help anyone who has them for an insurance company if they actually become seriously ill. When will this madness end? This is part of the gift of cancer. Not only do you have to fight for your life. Apparently you are sentenced to a lifetime of fighting for insurance benefits that you have paid for during the all of those years of good health.

Project Purple Denver Marathon & Half Marathon

I started this blog nearly two years ago when I was diagnosed with pancreatic cancer. I went searching the internet for blogs written by other young, athletic PC survivors and was devastated because it seemed that all of the others out there “like me” had passed away. I remember locking myself in the bathroom and crying one day when I found yet one more blog of someone who had passed away too soon from pancreatic cancer. That is when I decided to write about my experience. I wanted to be here, living a good life, healthy and strong, so that when someone else “like me” came along, they would have at least one long-term survivor who could provide some hope. This weekend, I found hope and inspiration in a whole new venue.

I love to run and I love to race. Perhaps even more, I love to help others find their love of running. I spent this weekend in Denver drawing inspiration from an amazing group of runners. Almost a year ago, I became involved with pancreatic cancer charity Project Purple. Since Project Purple is a charity that runs to beat pancreatic cancer, it was a perfect fit. What better way could I bring my two passions of pancreatic cancer advocacy/fundraising and running together? Since I became involved, I fundraised through Project Purple’s Pioneer Program, with the Bryce 100 being my goal race for the year. I directed a 5k race this past April in Colorado Springs. This weekend, I was in Denver for the Rock n Roll marathon and half-marathon with our newest Project Purple team. If you love to run and you want to become inspired, run with a team for a cause. You will find other people who are united by the same passion and who are willing to dig deep to make big things happen.

Dino and I worked at the Expo all day Friday and Saturday. There is nothing I like better than to spend the day with a bunch of runners. I love working race expos and races.I especially loved meeting the people who came by and wanted to tell me stories about how pancreatic cancer has touched their lives. While it is heartbreaking to hear how many people have been impacted, it is a gift to be able to tell others that there are organizations that are committed to helping change the future of pancreatic cancer.

Expo booth set up and ready to go.

Expo booth set up and ready to go.

On Saturday, Marathon Goddess Julie Weiss and equally awesome Project Purple runner Shawn Veronese came by to help at the Expo.

Julie, Dino and Shawn

Julie, Dino and Shawn

We showed Julie’s movie, Spirit of the Marathon 2 at a team event Saturday night and enjoyed some time together relaxing before the big race the next day.

Several of the Project Purple Denver team members at the event.

Several of the Project Purple Denver team members at the event.

When I stood in front of the room Saturday night, it literally took my breath away. I have such a sense of gratitude towards all of our runners. I have been told that by surviving, I provide inspiration for them, but really, it is these people who inspire me. Most of the people on the team have family members who are currently fighting pancreatic cancer or they have lost a loved one to pancreatic cancer. I had several friends who joined us just because they are my friends and they wanted to support my cause. Whatever their reasons for joining, they really provide me with a sense of hope for the future, and not just for pancreatic cancer, but for humanity. These are people who wanted to give of themselves. They wanted to train hard, raise money and run to help others. They want to make the world a better place for other people. It gives me goosebumps just thinking about how amazing they all are.

We had a team of 25 runners who came together from the east coast, the west coast and several places in between. The half-marathoners started out on a wave start at 7:15 am. The marathoners were bussed out to their start. The gun went off for them at 8 am. For the half, we had perfect weather conditions most of the way. The temps were in the 50s and overcast. The course was scenic through downtown Denver. There were a lot of runners running the half and since I spend a lot of time running the trails, I forget how fun it is to run in a crowd in a city. I particularly enjoyed the points on the course which were out-and-backs, as I loved seeing other teammates in their purple singlets. We all high-fived or yelled encouragement to one another out on the course.

I had several people ask me how my race was. The weekend really wasn’t about my race, and part of me wishes I had not even signed up to run so that I could have watched every runner come in to the finish. My recap of the race will be very brief. I liked the half course very much. I am not fully recovered from the Bear Chase Trail race 50 three weeks earlier, but I ran as comfortably as I could, enjoying the crowds, music and sights. I finished 13th in my AG of 463 with a finish time of 1:49:52. Several runners asked me how my race went and I told them, “It was fine” or “It was OK”. After the fact, I thought about it, and hope that it didn’t sound like I was disappointed in any way. Truthfully, I just didn’t care about my race. I cared about THEIR races. I wanted to talk about their experiences.

Larry, Laura, Jaclyn and Diane all finished ahead of me. Sadly, I did not get pictures of Larry or Laura, but I got photos of the rest of the runners. I crossed the finish line and ran into Rene, who got a couple of pictures for me.

At the finish.

At the finish.

With Diane, who finished ahead of me.

With Diane, who finished ahead of me.

Right after the finish, I jogged back to my hotel to check out, and then jogged back to the Project Purple race tent so that I could watch the runners come in. After the two-hour mark for the half-marathon, the clouds burned off and the temperatures started to climb. It would ultimately get brutally warm later in the day.

We had very experienced runners on our team and we had several people who were completing half-marathons and full marathons for the first time. We had some PRs, and we had some people who struggled with the heat and/or the altitude. I was so proud of each and every one of them. I was proud of them for putting in the training prior to the race. I was proud of them for how hard they worked to raise money. I was proud of them for finishing their races. Every person on the team crossed that finish line. I am exceptionally proud of each and every one of our runners, for the speedsters to the ones who had to dig deep in the remaining minutes of the race.

There is a saying, “If you want to change your life, run a marathon.” I would argue that supporting other runners also changes your life. It feels good to run for a cause. It gives purpose to those countless training runs. It also feels so good to celebrate other runners’ successes. I enjoy that as much, if not more, than my own finishes.

One moment stands out for me: I was hugging the members of family who recently lost a loved one and was told, “Thank you for all you are doing. You give us hope.” I cannot explain how much I appreciated those simply and kind words. That is a moment I will never, ever forget. No matter what you do, find something you are passionate about and find a way to give back. Surround yourself by people who inspire you. Make the world a better place for someone else. That is my definition of success in life.

Diane, me, JoAnne

Diane, me, JoAnne

With Jaclyn

With Jaclyn

With Vanessa

With Vanessa

With Faby

With Faby

With Marisa

With Marisa

With my middle school/high school friend, Lynn

With my middle school/high school friend, Lynn

With Julie Weiss and Shawn Veronese

With Julie Weiss and Shawn Veronese

With Matt, who ran a marathon PR!

With Matt, who ran a marathon PR!

Kristina and Eric.

Kristina and Eric.

Boomer & Felicia

Boomer & Felicia

Marshall & Kelley

Marshall & Kelley

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Carolyn and Colleen

Carolyn and Colleen

Paige, Julie & Lisa

Paige, Julie & Lisa

Phil & Kristen

Phil & Kristen

Alisa & Kim Lindsay

Alisa & Kim Lindsay

Kim, finishing her first ever marathon, finishing for Dixie, her mom, who passed away from PC two years ago.

Kim, finishing her first ever marathon, finishing for Dixie, her mom, who passed away from PC two years ago.

Thanks again to all of these fabulous people. I am incredibly grateful to have been a part of this team.

The team has raised almost $25,000. If you would like to make a donation, you may do so at the link below.

https://www.crowdrise.com/fundraise-and-volunteer/the-team/RocknRollDenver

My New World

In the weeks since my last post, I signed up for three races. I will be running the Breck Crest full with my husband at the end of August. Next up will be the Bear Chase Trail race 50 at the end of September. Finally, in October, I will run the Denver Rock ‘n’ Roll Half-Marathon with my Project Purple team. These races could not be any more different, but I am looking forward to a late summer/fall of running in beautiful places with my husband, my friends and teammates.

In the meantime, we have been keeping busy with travel, work and important milestones.

Riley got her driver’s license yesterday.

Outside of the DMV

Outside of the DMV

If we had been on target, she would have had it a while ago, but when one person in the family gets cancer, the whole family suffers consequences. When I was sick, I was not well enough to practice driving with Riley most days. So, while her friends, one by one, posted happy pictures outside of the DMV as they got their licenses, my daughter had to wait patiently for her turn. Sometimes she was distressed by the fact that it was taking so long, but she never made me feel guilty about my own limitations. It took us a long time to get her mandatory driving hours completed. But we finally did and the big day was Tuesday of this week. We waited for close to four hours at the DMV but I would have waited in that office for a week just to be there with her for that special rite of passage. It was one of those moments that happens once in a lifetime and I got to be there to witness it.

I know this is an exciting moment in most families, but for me, it was a joy that I can never fully convey. As I lay in the hospital after my surgery for pancreatic cancer, I wondered whether I would get to witness all of these milestones. I said to myself repeatedly, “I just have to make it to graduation.” Every dance, every ceremony, every college visit, every “first” or “final” day is something that I celebrate with an enthusiasm that I probably would not have had before. For every significant moment in my kids’ lives, I think to myself, “I didn’t know if I was going to get to be here, but here I am!”

After we went through the paperwork at the DMV, I teared up. Standing in a sea of people in the dirty and crowded room, I cried and hugged my daughter. I didn’t care who saw or what they thought. The truth is that I cry a lot these days. These tears are not from sadness, but are from a place of profound gratitude. Really feeling every single emotion has been one of the gifts of the last 20 months. I have always been an intense person. Whereas I used to try to downplay intensity, now I celebrate it. It is such a gift to fully experience love and joy and excitement and even sadness in this new post-cancer phase of my life. I never thought that my emotional world was muted before, but now it feels like it most certainly was in ways that I did not recognize. My emotions are often right at the surface. Simple things bring such profound joy. I see everything through a new, different and clearer lens. I went to sleep in a world filled with blacks, whites and grays. I woke up to a world that was an explosion of vivid and vibrant color.

Could this have happened without having experienced something so life-altering? I do not know, but I do think it is a fairly common phenomenon for some of us who have been affected by a life-threatening illness. Just last night, I spoke to a friend of mine who has been battling lung, adrenal and brain cancer. He shared with me that he experiences the same raw emotions all of the time. Neither of us feels ashamed of our new heightened emotional state. The biggest similarity I see between the two of us is the profound sense of gratitude that we have for every minute we get on the planet.  Every time I look at my kids, my husband, my dogs, or the beauty of nature in my home state of Colorado, I feel like my heart may just burst with joy and love. For all of the difficult moments from the last 20 months, I do not think I would change a thing. I get to be here on this beautiful planet for another day. How wonderful is that?

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I just finished a 100 mile race. What’s next?

I had a CT scan on Monday, June 15. I picked up a copy of the report and the big news is that it says “no masses”. This is awesome! I have now made it 19 months past my surgery and diagnosis without a recurrence of pancreatic cancer. June 16 also marked one year since I finished chemotherapy. I cannot believe all of the good things that have happened in this past year. It has gone by so quickly and has been simply amazing. My family and I are understandably feeling quite ecstatically happy about my good health. I don’t necessarily feel like I am beating the odds, though I suppose I am. Rather, it feels like this is how things are “supposed” to be for me and for us. I was not supposed to have cancer in the first place. I am supposed to be here, happy and healthy.While the future was once in doubt, now I make plans without really giving it too much thought.

It has been 2 weeks since I finished the Bryce Canyon 100 in Utah. Immediately following the race, our family spent several days touring some of the National Parks in Utah. This was the first vacation we have taken in a very long time and it felt like a fitting end to the ordeal of the last 19 months.

I was pleased to find that I was feeling well enough to do a series of small hikes in the national parks.Tour guide Peyton informed us that Bryce is actually not a canyon. It is a series of rock amphitheaters. We loved the hoodoo rock formations of Bryce Canyon. There are completely unique from anything we have seen anywhere else.

Bryce Canyon National Park

Bryce Canyon National Park

Steve & I next to enormous rocks in Bryce Canyon

Steve & I next to enormous rocks in Bryce Canyon

We moved onto Zion National Park following our time in Bryce.

Zion is completely different. It is a canyon and gets very hot. It is beautiful in a completely different way from Bryce.

The girls under the weeping rock, looking out towards the canyon.

The girls under the weeping rock, looking out towards the canyon.

Hiking the Watchmen Trail

Hiking the Watchmen Trail

We hiked up some of the Narrows “trail”, which actually just goes up the Virgin River through the canyon.

Hiking the Narrows

Hiking the Narrows

Under a small waterfall

Under a small waterfall

steve, peyton & riley in the narrows

Finally, we moved on to Moab and visited Arches National Park.

Obligatory family photo in front of Delicate Arch

Obligatory family photo in front of Delicate Arch

Peyton underneath Delicate Arch

Peyton underneath Delicate Arch

We came home tired and happy. It was so nice to get away together. We even survived five days in one small hotel room without killing each other.

When we got home, it was time to hit the ground running with real life. Steve signed up to run the Pikes Peak double this year. He will run the Pikes Peak Ascent on Saturday of race weekend and then run the full marathon on Sunday. For those who are unfamiliar with the race, it goes up Barr Trail to the top of Pikes Peak, a 14,115 foot mountain just outside of Colorado Springs. You can read more about the race at the website below.

http://www.pikespeakmarathon.org/

Steve has been training with me for the Bryce 100 for months now. I always feel so lucky that my husband and I can spend time running together. While it could be difficult when the kids were little because we both wanted to run, it has always been something that we have shared and bonded over.

I never wanted the kind of relationship where one of our passions or athletic pursuits trumped the other person’s. I see couples where one person runs and races all of the time and the spouse simply follows along and takes care of the kids. I know for some couples, this arrangement works well for them. But I love the fact that Steve and I spend time training together and that we take turns supporting one another’s athletic endeavors. We share our passion and truly encourage one another in pursuing the events and distances we truly love. He supported my Bryce venture 100%. Now I get to support his Pikes Peak double 100% and I am grateful to be able to do so.

Steve leaving me in the dust on his first real training run for the Pikes Peak Double.

Steve leaving me in the dust on his first real training run for the Pikes Peak Double.

A lot of times after completing a big goal race, I experience a bit of an emotional let down. After months and months of preparation, followed by completion of the event, I often find myself thinking, “Now what?” So far, I haven’t really had that post-race funk sink in. I am not sure why. I know immediately after finishing Bryce, I started thinking, “What race can I run next?” There really is such a emotional, psychological and physical high that comes from a successful race. It is easy to fall into the trap of chasing that feeling. If I had my way three days after the 100, I probably would have signed myself up for five more races. Instead, I decided to slow down and rein myself in a bit.

I know there are people who race constantly all year long. If they have jobs and families and can still make it work with their sanity and relationships intact, then I am in awe. I try to target a couple of big races per year and find that is really all I logistically do and still work and be a good wife and parent. Maybe that takes my badass credibility down a couple of notches, but that is OK with me. I don’t need to be a badass. I only need to be honest with myself about what I can successfully manage in my life. I am most proud when I feel like I am doing a good job balancing all of the roles I play.

I know I will eventually have to have another epic race on the horizon. Right now I just want to have some fun with my running and enjoy some mental and physical recovery and rejuvenation. I plan to run the Denver Rock n Roll Marathon with Project Purple in October and I am looking forward to sharing training runs with my teammates. I have a couple of other trail/ultra races I am eyeing, but I really want to support my husband in his upcoming races and I do not want to miss out on Riley’s senior year of high school. We have started the summer college tour and interview process and I know that in the blink of an eye my baby will no longer be living with me.

For now, I continue to reflect back on the Bryce experience and think about how truly incredible it was for me. Instead of being consumed by what I feel I need to do next, I am trying to simply enjoy all of the wonderful experiences of the last couple of weeks. For endurance athletes, there seems to be this insistence that we always have to constantly outdo what we have already done. I think that in many cases, it boils down to the need to chase that high. Right now, I am resisting that urge to compulsively chase the high of big ultra endurance events. I am really focusing on taking some time to breathe and celebrate my life and my accomplishments.   I will, of course, pursue other races down the line, but for a little while, my goal is to support my family as they work towards fulfilling some of their own dreams. I will cheer on my husband at Pikes Peak. I will soak in all of those memorable “last times” with my high school senior. I will focus on making some good memories with friends and family over the summer. I will run simply for the joy that running brings me.

Finally, I wanted to say a special “Thank You!” to Arianne Brown for the nice article on KSL.com about my Bryce adventure.

http://www.ksl.com/?nid=1010&sid=35027516