No Air

I felt secure in my health. Invincible. I knew I was not immortal but I pictured a long, active, healthy life surrounded by people I love. I had a follow-up appointment scheduled with my doctor on a day when my husband had training for his job. He offered to change his training days, but I was so confident all would be fine that I told him not to bother. I would go alone. It would be fine. I would be fine.

As I  waited in the oncologist’s office, I had some mild pre-report jitters, which is normal.. The doctor came in and we engaged in a couple of minutes of idle chit-chat. I was waiting for the words, “Everything is fine. I will see you in three months.” But, instead, he opened his mouth and told me there was a lymph node near the celiac plexus that needed to be biopsied. As we looked through my scans together, he showed me another spot, this one on my liver. He emphasize that both could be nothing. However, he was recommending further testing to be sure.

As I listened to him, I kept a half-smile on my face, because I don’t want to show that I am rattled. But, I can feel the air leaving the room. I have a deja vu. I am back in 2013  when I first heard bad news about a tumor in my body that needed to be checked out further. I feel the same half-smile on my face, nodding in agreement to a voice that sounds a million miles away. No air. I hear the tumor board will discuss my case and let me know what will happen next. I think: I am alone. WHY did I come alone? Because I thought I was fine. I AM fine. But I thought I was fine in 2013, also. I don’t know what is real. I cannot trust my own instincts. I am afraid and so very alone.

I think, ‘What am I going to tell my daughters?’ I cannot tell them everything is fine, but I don’t want them to worry needlessly. After all,  I am going to be fine.

I leave and am, fortunately, able to speak to my husband. He sounds like I feel. A punch to the stomach. Fear. Disbelief. We are both desperate to be together, but are over 100 miles apart. I cry on a bench by the hospital elevator and I don’t care who sees me. I can’t drive. I can’t breathe. He has to return to class. I drag myself downstairs for the ride home but I just can’t do it yet. I sit on another bench and cry for 20 minutes, watching the rain pouring down outside. What am I going to tell my daughters?

Eventually, I pull it together enough to drive home. I talk to my parents. I talk with a couple of very close friends. I get home and sit on the floor, unable to move for 20 minutes. I am so thankful for Sadie, my Boston Terrier, who is licking my face. When my daughters come home, I tell them I need another test, but I do not elaborate. We have too little information. I am scared but I do not want to cause them unnecessary stress. There is no point. It seems cruel. They will know as soon as we know for sure one way or the other, good news or bad.

Sadie on my lap

The doctor calls the next day and says a biopsy is recommended. I vacillate between thinking I am totally fine and feeling fear that comes from seemingly nowhere. It consumes me on a visceral level. It does not seem to be triggered by anything in particular. I can only assume it is a response to the old wounds and fears coming back. One minute I am fine and the next I feel like the earth is swallowing me whole.

I cannot think about possible treatments. In fact, I don’t. I think about the test and just want to get through that. But when Stephen and I start discussing plans we have…races we have signed up for and trips we will take to see family, I become choked up. “But I have PLANS,” I think. “I have so much stuff that I want to do!”

The waiting is the hardest. Neither of us sleep well. We walk around, distracted zombies, trying to go through the motions and fulfill our daily duties and obligations. There is no time to emotionally deal with our personal crisis. We are so busy, we wish we had time to just sit and hold each other. When there is a moment of down time, our thoughts become our own worst enemies.

Steve & Tonia Santa Fe

I have the test. They biopsy enlarged lymph nodes. I go home and I wait and wait and wait. i try to figure out what it means. Why haven’t I heard anything? Is no news good news or does he not want to deliver bad news over the phone? I over analyze.

I actually think that I am healthy and fine. The logical side thinks I will be OK, but since I thought I was fine prior to my initial diagnosis, that leaves the door slightly open. Wednesday comes and I am supposed to see the doctor. A blizzard arrives, shutting down essentially every major road on the Colorado Front Range and I am stuck at home waiting to see if I will learn any news. I work and play games with my kids, but I am anxious and distracted. Finally, my phone rings and I get the news: I am fine. There is no sign of cancer in the lymph nodes.

There is relief and joy when I tell people, but after two-and-a-half weeks of living in some alternate universe, my own personal little time in hell, I am mentally exhausted. The news comes to me not as a surprise, but as a confirmation. I am fine. I knew it.

Today, as everything sinks in, I celebrate a new day of continued good health with a run. There is air. I can breathe again.

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7 thoughts on “No Air

  1. I am so sorry you had to go through it. “no air” is exactly the way to describe that time in the alternate universe where terror is just one moment away from screeching from the brain, heart gut and out your mouth. I’m so glad it turned out to be ok.

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  2. I am SO glad everything is okay! Gosh can I relate to what you said about being so mad because you have PLANS. That’s how I felt when I found out I had a large mass on my pancreas.That month before my surgery I tried to go through normal life without succumbing to the fear but the fear is a beast you can’t shake. It is SO inspiring to see someone so fit and active after pancreas surgery. I’m slowly getting back into shape after my surgery and it isn’t easy. But I’m okay. You’re okay. Thank goodness for that!!! We have so much life to live in these mountains. May the spring bring you many awesome runs and much joy!

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  3. I am so glad to hear everything is fine! But sorry you had to go through 2 weeks of waiting hell. I wanted to let you know what an inspiration your blog has been to me when I was going through chemo for breast cancer. I had been primarily a road runner at the time, but just this Saturday completed my first 50k (on a beautiful trail!), and am planning on more ultras in the future. Thank you, and happy running!

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    • Congratulations on running your first 50k! Which one did you do? I am glad you reached out. It is nice to hear that my words had an impact on you during a difficult time. May we both remain cancer-free and healthy for the rest of our lives.

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